Why do you need access to my medical records?
Combining information from your medical records, questionnaire data, and DNA provides a comprehensive overview for researchers to use in a wide range of investigations. We will only access relevant sections of your medical records that will be helpful to the goals of EDGI and the research projects approved by the NIHR BioResource Steering Committee. For example, we will request information on the details of your history with eating disorders and how well you responded to treatment. Unless strictly necessary, all information obtained from your medical records will be given a pseudonymised (coded) ID, kept strictly confidential and will be stored separately from your personal information (e.g. name, date of birth).
How will you access my medical records?
Accessing medical records is likely to be done centrally through a computer on the Secure NHS Network (N3/HSCN) using your NHS number. Any data that is stored will be linked-anonymised.
What sections of my medical records will you access?
We will only access relevant sections of your medical records that will be helpful to our research across mental and physical health.
What will you do with my medical records?
We will combine the information from your medical records with your questionnaire data, and DNA to provide a comprehensive overview for researchers to use in a wide range of investigations.