How is the information I give you kept confidential?

Keeping your information secure is our highest priority. There are a number of regulations and policies that the Eating Disorders Genetics Initiative (EDGI) Project complies with to ensure data is protected and that biological samples are stored correctly.

Useful links for more information about use of personal and biological data

The EU General Data Protection Regulation (GDPR)

The General Data Protection Regulation is an EU Regulation which was put in place to ensure the protection of all EU citizens’ data privacy. It also gives people the rights to access any information held about them.

Human Tissue Act 2004

If you provide the EDGI team with a saliva sample, your biological sample is protected by the Human Tissue Act 2004. The Act regulates the removal, storage and use of human tissue and ensures all samples are collected appropriately.

If you would like to read more on how we keep your data secure, click here to read more information on confidentiality.